Friday, May 22, 2009

Relieved

Aiden had his CT scan today. He laid very still and was very good so they didn't have to sedate him. I ended up asking for a copy of the scan and they gave it to me. I got a phone call a couple of hours later saying that Aiden did not have craniosynostosis. I was so relieved, like a weight had been lifted off my shoulders.
Now we just have to wait to see if insurance will cover a helmet, I should find out within the next week. I am so excited that we will just be using a helmet and will not have to go through surgery. The helmet is going to be a pain because he has to wear it 23 hours a day and it's going to be summer so it will be hot but I would choose that over surgery anyday.

Tuesday, May 19, 2009

OMG WHY?

Aiden had an appointment with a specialist to see about getting a helmet to help with his plagiocephaly (flattening of the head) due to his torticollis (a muscle in his neck isn't long enough). His head was bad enough to qualify him for a helmet so we were just waiting to hear if insurance would cover it or not. In the mean time, the specialist wanted to get an x-ray to rule out another condition that would cause the flattening of the head, it's where the bones in the head fuse prematurely.
He had an appointment with his regular doc today, and she did the x-ray. Well about 4:30 I got a call saying that he did have Craniosynostosis (the bones in his head had fused) but the x-ray tech thought it was mild and they wanted to get an ct scan to make sure. So we now have an appointment for the scan on Friday. I am so scared, the only way to correct Craniosynostosis is surgery, where they take some of the bone in the head out to make sure there is enough room for the brain to grow.

Wednesday, May 6, 2009

Insane

Alex had a rough time keeping his hands off other children. In the bathroom he kicked another boy. We had him sit in a "time out". Then he refused to come to lunch. He did not eat.
That is the note I got today from Alex's school. Lately he has been becoming more aggressive. I don't know if it's because of all the changes in his life (going to Madison last weekend, or staying by my moms the weekend before) but I just don't know what to do with him. I brought it up to his speech therapist and he basically told me that it could be from all the change but to make sure to deal with it now so it doesn't get worse. We have been doing time outs but they don't seem to be doing to job. This is the first "really bad" note I got from school. Usually they will just say something like, Alex had a little bit of a rough start but did really well.

Sunday, May 3, 2009

Glad to be Home

After a long weekend I am happy to be home. We had a blast this weekend but nothing beats being at home relaxing. It was a long ride but the kids did well. I expected them to nap all the way home but they didn't, they stayed awake the whole way but was very quiet. Now they are playing nice. I was so happy to see Aiden when I got home. He was so happy to be home he took a bottle and went to sleep.
The kids were so excited to be home, and the cat missed us terrably.

Saturday, May 2, 2009

The FASD Conference

Last week was absolutly exhausting. Between trying to pack for the trip and all three kids being beastly, it was just exhausting but we made it to Madison on Thursday night/Friday morning around midnight. The conference was all day Friday and half of the day today. I learned so much and met some really interesting people. I am really glad that I decided to come. Aiden stayed home with a sitter since I figured he wouldn't have any fun, he is just too young. The older two are having a blast and have been pretty good about all the changes lately. Today was a little bit of a challenge with Alex but he is swimming now so all is good with the world again. We visited the zoo here today and kids loved looking at all of the animals. Tomorrow we plan on taking a tour of the state building and visiting the Children's museum. We are going to head home tomorrow after the museum. I can't wait to get home. As much as I needed a vacation, it will be great to be back in the comfort of my own home.