Friday, July 24, 2009

My much needed update on the kids

It's been a while since I wrote, I know, I have been slacking lately. I have been really busy trying to get packed up to move, alot more issues with Aiden, and Alex still in therapy and now playing baseball with a special needs team. It's exhausting keeping up with them.
Alex has been doing remarably well. A couple of weeks ago his speech therapist said that he was pretty certain that if I took Alex back to the autism doc that the doc would change Alex's diagnosis from autism to aspergers syndrome. That is such great news. I mean aspergers is still autism but a very mild form, which means we are making progress. Alex has made tons of progress this past year, and to have a person who works with so many children with autism even suggest that one day Alex might lose his diagnosis is just great. Alex has become social, though not in an appropriate way, but he isn't in his own world all the time anymore. He has done a complete 360. His speech is improving everyday and his stuttering has pretty much stopped. Which is just so great. He has other issues that keep coming back when he regresses with change but we are working on those also (like the head banging, spinning, heel walking, etc).

Katie has moved back in with her mom and I couldn't be prouder of both of them. My sister, her mom, has completely turned her life around. I am positive that she will make it. Katie handled the transition very well. She loves being back by her mom. I miss her so much, not that I never get to see her or anything like that, I just miss having her here all the time. Her room looks so bare without all of her clothes and toys. But at the same time I know it's where she belongs. Every child deserves to be with their mom and it wasn't fair to her that I had to spend so much of my time working with the boys and their issues. Not that I was neglecting her in any way, just that she deserves better and my sister can work with her and her issues alot more than I could.

Aiden is my little issue man. He just has issue after issue. Last I wrote he was going to be seen by a pediatric opthomoligist. The optho. said that his eyes looked great and to bring him back in 6 months. So now the worry is back to autism. He has finally started to track and actually attends to objects now. Its so great to see him making some progress. We have attempted to start solids and it just wasn't right. I have never seen a child respond to solids the way he did. So I talked to the occupational therapist who is coming in once a week to work with him. At first she didn't seem overly concerned but once I asked her why he spits up so much while he is eating her opinion changed. I learned that his suction is that of a newborn (by this age when you take the bottle out you should have some difficulty getting it out, but not with Aiden). She also stated that he has an overactive gag reflex which is probably the reason for not doing well with solids. She is going to bring some stuff next week that should help, but there are no guarentee's. All these issues sort of point to autism that it is scary. His motor skills are great, just like Alex's were, it's just the social issues, the adversion to food, the constant need to be stimulated, etc. I guess only time will tell though, but I hope it's not autism, having one child on the spectrum is hard I couldn't even image it with two.

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